DH Update. Mark met with the doctor for surgery clearance. His MELD score is up to 20 again. The doctor is against surgery to fix the knee. She still wants the amputation but has agreed (finally) to support whatever Mark wants to do. He still wants the repair. We told her we had scheduled the surgery for the 6th and she let us know she will not be in town that day so we need to reschedule. I checked with the ortho doc's office and the PA said keep that day but the ortho doc came back and said reschedule. If we are lucky it will be the 20th. ***** we are tentative for the 27th now *****

Everyone tells us to act with a sense of urgency but no one else seems to be. Lots of feet dragging and delaying. There was supposedly a lot of discussion going on between the surgeon and the ortho and we asked if the ortho was up on what needed to happen. He said he was at the meeting but now that all seems to have been lost.

I am just so frustrated. I don't know what to do anymore. I want to rest....and not have this to deal with. Imagine how my husband feels. He thinks the liver doctor just wants his leg. She has no bedside manner whatsoever. Once we get the surgery done I am calling to see if we can switch to another hepatologist in the group. That won't happen until knee surgery so we don't have to start over.

Frustrated. Overwhelmed. Lost. I am suppressing many things so not sure what other feelings are lurking out there.